1/21/2019 0 Comments if i had 24 hours to be normal..When you have extreme Chronic Pain and Rare Chronic Illnesses, you often wonder what it would be like to be "normal" to not live with any pain, or symptoms, you wonder what you would do if you only had "24 Hours to be normal." I often look at healthy people and wonder what it would be like, "what would it be like to be able to clean the entire house and still have energy to get on with your day." Or I wonder what it would be like to be able to go on a long road trip and still be able to enjoy the day after a very long car ride. I wonder what it's like to go to the grocery store, and THEN go home and cook the food too. I also often wonder what it would be like to be able to walk the dog every single day without horrible pain.
I don't wish it was my life, I'm happy with my life, I truly believe my pain, illnesses, the way my life is, all has a purpose, there is a reason my life is, the way that it is. But if I sit down and really think about what it would be like to be healthy, it's fascinating. When I look at healthy people I can't help but be fascinated by them, by their energy levels and lack of pain. It is SO fascinating to me that there are actually people who are able to clean the house and grocery shop and walk the dog, and go to work, all in one day. So, if I had 24hrs to be healthy and "normal" here is what I would do. I would probably wash, dry, fold, and put away all of my laundry. Yes, I do actually wish that i could do my laundry, without horrible repercussions. Generally when I do laundry, I wash it one day, then fold and put away the next day. While the laundry was cycling through, I would clean and organize my room, REALLY good. Remember, I only have 24hrs before the pain returns, so I want to get the important stuff done. When the chores were out of the way, I would go for a long run, with my dogs.. On a normal day, I'm not able to walk my dogs without being in bed the rest of the day. When I first got sick, I dreamt of going for long runs, I used to be able to run before my back started to hurt when I was 11. I don't dream of running anymore, I know my limits, but if I had one day to do anything and not deal with pain, I'd run. After my laundry, my chores, and my run, I would take a LONG HOT shower. When I got out of the shower, I would do my make up and curl my hair. Because of my adrenal issues, I sweat too much to wear make up, and my hair doesn't stay curly, because, well, sweat! Pre-Illness, before my extreme pain and illness really set in, I would do my make up and hair everyday. After I was dressed for the day, I would sit at my desk, and sketch, color, and paint. I usually have to craft in small increments, because sitting for too long causes pain, so I would love it if I was able to sit at my desk for a few consecutive hours! When I was finished crafting, I would go to the grocery store, buy food, come home and make my family dinner.. I would probably take my dogs on another evening walk, and love it! In this 24hrs, I would be able to put my head on my pillow that night, and just fall asleep, no meds, no tears, I would just sleep. I wouldnt fill my one day of normalcy with too much, wait, yes I would. Because when you deal with life long illnesses - a day without pain would be a dream come true, so I would just jam pack my day! You mean, I can do ANYthing I want, and I won't deal with horrible, horrible pain?!? Heck Yes, I am going to do everything! Again, I don't unhealthily long for a different life, I don't wonder everyday, I love my life, and I believe my pain has a purpose, but sometimes I wonder, what I would be able to do if I didn't live in pain.
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AuthorMy name is Madison, I have quite a few rare diseases and chronic illnesses. Archives
July 2019
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